Rare Diseases Archives

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Facilitating a Large-scale Global Study on Amyotrophic Lateral Sclerosis (ALS) through mobilehealth

Posted | April 8, 2024

mdgroup is currently supporting a global study on the rare disease Amyotropic Lateral Sclerosis (ALS), a nervous system disease that affects nerve cells in the brain and spinal cord. We…

Alex Cheesman

Love0

Navigator: Providing Logistical Support to a Family and Patient with Danon Disease

Posted | December 14, 2022

Facilitating remarkable patient experiences and removing the burden of site participation. The Challenge A young patient had the opportunity to participate in a clinical study into Danon disease, a rare…

Creative 4 All

Love0

Blog

Rare Disease Day 2022: Rafaela’s Story

Posted | February 24, 2022

Rafaela Vale is a Clinical Manager at mdgroup, working out of our Brazil office. She specialises in rare disease clinical trials, and has a special affinity to patients and their…

Creative 4 All

Love3

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Rare Diseases

Facilitating a Large-scale Global Study on Amyotrophic Lateral Sclerosis (ALS) through mobilehealth

Navigator: Providing Logistical Support to a Family and Patient with Danon Disease

Rare Disease Day 2022: Rafaela’s Story

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